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Cystic Fibrosis Trust

Head of Healthcare Data and Pharmacovigilance

Salary: £53,162 per year plus benefits and flexible working

Contract type: Permanent

Full time position (35 hours per week)

Based in Aldgate, London

The Cystic Fibrosis Trust is the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. We invest in cutting-edge research, drive up standards of clinical care, offer support for everyone affected by cystic fibrosis, and campaign hard on the issues that matter.

You will be providing leadership for the Cystic Fibrosis Trust’s Data team, building upon the success of the UK Cystic Fibrosis Registry, and in line with the overarching strategic priorities of the charity. You will work with partners to ensure data is used to enable people with CF to access safe, effective and quality care. With the Registry as a lynch pin, you will oversee the collection, curation and utilisation of clinical, patient reported outcomes and experience data, as well as NHS administrative, education, social deprivation, and environmental data.

Benefits include 30 days annual leave and opportunities for learning and development.

Applications for this role are now closed.

Your privacy

We welcome your interest in working with us here at the Cystic Fibrosis Trust. In order to review and manage your application, we need to collect certain personal information about you through your application. We are committed to protecting your personal information and being transparent in what we do with it. 

We will only use your personal information as required to manage your application to work with us, or as required by applicable law or regulatory requirements.  

We do ask that you help us monitor our performance on equality by completing the accompanying Equal Opportunities Form which contains no identifiable personal information. Doing so is optional, and any information you provide through this form will be used to provide generalised aggregated reports. It will not affect your application in any way and is kept separately.

In the event your application is unsuccessful, we will retain your information for up to 6 months, before it is disposed of confidentially.  

For more detailed information on your rights and how we use any data you provide us, please see our privacy policy

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are around 10,500 people living with it in the UK.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.