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Cystic Fibrosis Trust

UKCFC 2018 video gallery

Watch the presentations from the UK Cystic Fibrosis Conference.

Day 1, session 1, talk 1: Welcome and conference introduction

18 September 2018

David Ramsden, Chief Executive, welcomes delegates to the 2018 UK Cystic Fibrosis Conference.

Day 1, session 1, talk 2: Setting the scene for day one

18 September 2018

Dr Janet Allen sets the scene for day one of the conference.

Day 1, session 1, talk 3: Latest developments in the therapeutic pipeline for CF

18 September 2018

Oli Rayner, Special Advisor for Research and Patient Involvement at the Cystic Fibrosis Trust talks about the latest developments in the therapeutic pipeline for CF.

Day 1, session 1, talk 4: Potential disease-modifying new treatments in the pipeline

18 September 2018

Dr Damian Downey, Clinical Senior Lecturer at Queens University Belfast, discusses the latest information on various transformational treatments in development, triple terminology and a likely timeframe.

Day 1, session 1, talk 5: Survival, treatments and transplant: Using the Registry today to inform CF care tomorrow

18 September 2018

Dr Ruth Keogh, Associate Professor of Medical Statistics at the London School of Hygiene and Tropical Medicine, discusses personalised information on survival and forecasting future population trends, understanding the long-term impact of Ivacaftor and learning about the transplant pathway in the UK.

Day 1, session 2, talk 1: Putting the person into personalised medicine

18 September 2018

Dr Mandy Bryon, Consultant Clinical Psychologist at Great Ormond Street Hospital, discusses putting the person into personalised medicine.

Day 1, session 2, talk 2: Delivery of care for people with CF: Co-designing the future

18 September 2018

Professor Stuart Elborn, Professor of Respiratory Medicine at Imperial College London & Royal Brompton Hospital, discusses the current model of care, external pressures, the rising number of adults with CF, changing expectations of parents and people with CF and novel solutions.

Day 1, session 2, talk 3: How do we ensure the person is at the centre of their care?

18 September 2018

Professor Rob Horne, Professor of Behavioural Medicine and Director at the Centre for Behavioural Medicine at UCL School of Pharmacy, asks whether personalised medicine achievable, and discusses the impact on the individual and clinical teams.

Day 1, session 3, talk 1: Pulmonary complications of CF

18 September 2018

Professor Jane Davies from Imperial College London discusses the pulmonary complications of CF.

Day 1, session 3, talk 2: CF MATTERS - Comparing the use of microbiome-directed antibiotic treatment versus standard therapy for patients with CF experiencing respiratory infections

18 September 2018

Professor Barry Plant, Consultant Respiratory Physician and Director of the Adult CF centre at Cork University Hospital and Clinical Senior Lecturer at University College, discusses large EU-funded collaboration across Europe to understand pulmonary infection for CF, microbiome analysis and nsights into pulmonary infections following long term ivacaftor therapy.

Day 1, session 3, talk 3: Protection against emerging pathogens

18 September 2018

Dr Charles Haworth, Director at the Cambridge Centre for Lung Infection, discusses cross-infection, challenges of Mycobacterium abscessus and novel hospital design.

Day 1, session 4, talk 1: Regenerative medicine

18 September 2018

Professor Steve Hart, Professor in Molecular Genetics at the UCL Institute of Child Health, discusses regenerative medicine.

Day 1, session 4, talk 2: CF-related diabetes. Is it possible for the pancreatic islets to regenerate?

18 September 2018

Professor James Shaw, Professor of Regenerative Medicine for Diabetes and Honorary Consultant Physician at Newcastle University, discusses the significance of CF-related diabetes, whether loss of pancreatic islets is secondary to pancreatic damage and whether islets can regenerate.

Day 1, session 4, talk 3: Gene editing – how do we get from cells in a lab to lungs in a person?

18 September 2018

Patrick Harrison, Senior Lecturer at the Department of Physiology at University College Cork, Ireland, discusses the long-term goal to find the pathway to a CF ‘cure’ harnessing gene editing to deliver over the next 10 years, small molecule treatments, and what are the bottle necks to therapies.

Day 2, session 1, talk 1: Welcome and day two introduction

18 September 2018

Richard Hunt CBE, Chair of Trustees at the Cystic Fibrosis Trust, introduces day two of the UK Cystic Fibrosis Conference.

Day 2, session 1, talk 2: Our three-year strategy

18 September 2018

David Ramsden, Chief Executive of the Cystic Fibrosis Trust, presents how the Cystic Fibrosis Trust's three-year strategy is responding to the needs and demands of the CF community.

Day 2, session 2, talk 1 and panel: Pathways to new medicines and the value of new medicines

18 September 2018

Professor Jane Davies of Imperial College London discusses pathways to new medicines and explores and explains the current drugs pipeline and the upcoming challenges. Following, is a panel discussion on the value of new medicines.

Day 2, session 3, talk 1: The future of care

18 September 2018

Dr Keith Brownlee, Director of Policy, Programmes & Support at the Cystic Fibrosis Trust, discusses the future of CF care, followed by a panel discussion.

Day 1, session 4, talk 1: Cystic fibrosis and the 'real world'

18 September 2018

Interactive presentation/live podcast by Will Marler covering different experiences of day-to-day life with CF and the range of information and support issues faced by people with cystic fibrosis.

Day 2, session 4, talk 2: Closing comments

18 September 2018

Closing comments from Richard Hunt CBE, Chair of Trustees at the Cystic Fibrosis Trust.

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

More information

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