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Support videos

We have loads of informative videos about living with cystic fibrosis, the science behind the condition and the support that we offer. You can explore all of our videos on our YouTube channel.


What is CF?

What is cystic fibrosis, exactly?
Here, Charles who lives with cystic fibrosis, explains what the condition is and how it affects the body.

Ask me anything about cystic fibrosis
Brothers, sisters and friends talk about all the things they always wanted to ask each other about cystic fibrosis.

Gene mutations
Find out more about the different CF-causing mutations of the gene that makes the CFTR protein, and why precision medicines like Orkambi can help to correct this issue.

Cross-infection
People with cystic fibrosis should never meet to avoid spreading dangerous bugs, or infections, to each other. Find out more about what this means in practice.

How does CF affect the body?

Take a look at these three videos that explain how different parts of the body in people with cystic fibrosis are affected by the condition, and how these issues can be treated.

Lungs
Most people with CF will experience problems with lung function, due to thicker, stickier mucus causing an increased risk of lung infections.

Pancreas
The pancreas makes digestive enzymes that help break down your food, allowing you to absorb nutrients. In people with CF the tubes that transport these enzymes can become blocked.

Liver
Around five to ten percent of people with CF will encounter liver problems. This is caused by bile becoming thicker, making it difficult for it to flow through the bile ducts.

Young people

The A to Z of cystic fibrosis
This video, which is perfect for younger children, goes through the A to Z of cystic fibrosis, explaining issues like having to eat more fatty foots and the risk of infections.

The rest is up to me (a guide for friends)
In this video, which is suitable for older children, we asked six young people what it's like living with cystic fibrosis.

Children's books

We produced two children's books for young children who have a parent with cystic fibrosis. Take a look at the animated video versions of these books below, or download them or order a physical copy here.

Transition

Youth work: transitioning to adult services
Moving from paediatric into adult care can be a daunting time for young people with cystic fibrosis. Take a look at the work we're funding to support this transition.

Pre-school and primary school

The following videos were produced alongside our pre-school and primary school pack.

When your child starts school with CF
Here's a overview of how one group of parents, teachers and a CF nurse supported a pupil living with cystic fibrosis during his first year at school.

Starting school: Teachers Q&A
What do you do if a new pupil who has cystic fibrosis joins the school? Teacher Fionnuala and inclusion officer Claire speak about what they learnt supporting a child with the condition.

Starting school: Nurse Q&A
What do you need to do if a child is starting school with cystic fibrosis? Nurse Karen Henney offers advice to teachers and parents in this FAQ.

Secondary school

Take a look at our secondary school pack, which includes an in-depth guide for parents, a factsheet for schools and a magazine for young people.

5 tips for starting secondary school
In this issue of CF News, Callum shares his top tips for what you should know before starting secondary school if you've got cystic fibrosis.

Leaving school

The following video was produced alongside our leaving school booklets.

School's out, what's next?
You've got CF and you've just finished school or college. Here are a few things you might want to think about when choosing your next steps if you're living with cystic fibrosis.

Mental health

Body image and cystic fibrosis
Meet some of the people featured in our body image booklet and find out more about some of the issues they've faced when it comes to body image and their cystic fibrosis.

BBF talks: mental health and cystic fibrosis
Watch this 20-minute talk from Chloe, a member of our Youth Advisory Group and the NHS youth forum, who discusses her experiences with mental health. This was produced with support from our Building Brighter Futures programme.

Transplant

Transplants: Tor's lung operation
This video of Tor discussing her experiences receiving a lung transplant was produced alongside our transplant resources.

New diagnosis

These videos were produced alongside our new diagnosis resources, which include a new parent pack, and a pack for friends and family.

New diagnosis
This short film features the real story of Michelle, her experiences of receiving a CF diagnosis for her daughter, and the support she receives along the way.

Starting a family

These videos were produced alongside our starting a family booklet, which contains information to support you in your decision of whether or not to start a family if you have cystic fibrosis.

Starting a family if you have cystic fibrosis
Two families and a CF doctor answer some questions on fertility for people affected by the condition. 

Breastfeeding for mums with CF
Hear from a mother with CF and a dietitian about what you might need to know about breastfeeding if you have CF, and whether it is the right decision for you.

Starting a family video series

We have three videos collections that answer some of the questions you might have about starting a family.

Ask a mum
Here, a mum with cystic fibrosis answers questions about her decision to start a family, including how she found out her partner was a CF gene carrier, what additional treatments she needed when she became pregnant and what it's like being a mum with CF

Ask a dad
In this video, a dad with cystic fibrosis talks about how long it took to start IVF treatment, what the process was like, and when he first discussed having children with his partner.

Ask a doctor
A CF specialist covers some of the questions that arise when a man or woman with CF decide to start a family. This video covers the challenges with conceiving, carrier testing to see if both parents carry a copy of the CF gene, the effect having a baby might have on a woman who has had a lung transplant, and the general impact having a baby could have on the health of someone with cystic fibrosis.

Work, welfare and rights

You can find out more about benefits, your rights in the workplace and the support we can offer you in these areas here.

Welfare, rights and PIP
In this video Helpline caller Ellie explains how she was supported by Sangeeta Enright, our Welfare and Rights Advisor, with claiming personal independence payment (PIP).

Preparing for work video series
In this video series, you can watch the six-week workshop, run by Building Brighter Futures, that explores useful methods for applying for a job as well as your rights as someone with cystic fibrosis.












Consensus documents

Our consensus documents are designed for clinicians and allied health professionals involved in treating people with cystic fibrosis.

Publications

Find information on all aspects of life with CF in our booklets, factsheets, leaflets, information packs and more.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.